Cri Du Chat Syndrome Support Group
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Physical and Medical features
Early Development Milestones
Sleeping Difficulties
Hearing and Vision
Language and Communication
Common Behavioural Difficulties
Respite Care
Socialisation and Daily Living Skills
Schools Related Difficulties
Leaving School - What Next?
Impact on the Family
Useful definitions
Below are links which you may find useful
The Genetic Interest Group (GIG) is a national alliance of organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders. |
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Contact a Family is the only UK charity providing support and advice to parents whatever the medical condition of their child. |
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The Family Fund is a registered charity covering the whole of the UK and is funded by the national governments of England, Northern Ireland, Scotland and Wales. |
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Carers Allowance for those looking after someone who qualifies for DLA. Conditions apply |
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Programme using makaton signing by the BBC |
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The Challenging Behaviour Foundation exists to demonstrate that individuals with severe learning disabilities who are described as having challenging behaviour can enjoy normal life opportunities when their behaviour is properly understood and appropriately managed, and to support parents and carers through education and information to enable this to happen. |
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The Scoliosis Association (UK) was founded in 1981. It is the only independent support group for scoliosis in the UK. This website will help you through all the jargon that is associated with this disorder. |
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Steps is a charity that aims to help people with lower limb conditions such as hip or foot problems. Steps provides support for families and individuals and provides vital services such as a helpline, annual events, publications and much much more. |
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Makaton Vocabulary Development Project |
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123 Golders Lane |
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Motability |